Parental Communication in Raising Children with Intellectual Disabilities: A Study at Rumah Anak Prestasi Surabaya

Authors

  • Wipi Evellyn Adea Pramesti Dr. Soetomo University
  • Siska Armawati Sufa Dr. Soetomo University
  • Iwan Joko Prasetyo Dr. Soetomo University
  • Harliantara Dr. Soetomo University
  • Anurag Hazarika Guest Faculty, Tezpur University, Assam, India

DOI:

https://doi.org/10.31941/pj.v25i1.7261

Keywords:

parental communication, intellectual dissabilities, emotional approach, visual communication, storytelling

Abstract

This study aims to understand the communication patterns of parents in caring for children with intellectual disabilities at Rumah Anak Prestasi Surabaya. The background of this study is the lack of research on communication between family members, especially in the Indonesian context, involving parents in the informal education of children with disabilities. This study uses a qualitative approach with in-depth interviews, participatory observation, and documentation, and analyzes data using the transcendental phenomenology method. The results of the study show three main themes in parental communication, namely emotional and empathetic approaches, visual and non-verbal communication, and the use of storytelling as an instructional strategy. Parents emphasized the importance of empathetic communication and emotional involvement, such as setting aside special time for their children, listening to their feelings, and using physical contact to calm them. In addition, visual media such as pictures of faces and flash cards were used to clarify instructions and children's emotional expressions. The use of stories also helped children understand their values and emotions through relevant fictional characters. In conclusion, open and empathetic communication, as well as the use of visual communication, are key to supporting the development of children with intellectual disabilities in Indonesia.

Downloads

Download data is not yet available.

References

Aasma, Nawaz, G., & Jaleel, F. (2022). A Comparative Study on Communication Skills of Out of School and School Going Children With Intellectual and Developmental Disabilities. Journal of Business and Social Review in Emerging Economies, 8(2). https://doi.org/10.26710/jbsee.v8i2.2466

Al-Bahrani, I., & Hokroh, M. (2022). Pedagogy Leadership During COVID-19 Pandemic: New Kinds of Practice. Open Journal of Leadership, 11(03), 313–333. https://doi.org/10.4236/ojl.2022.113017

Beltrán-Jaimes, J. O., Sandoval Casilimas, C. A., & Esteban-Guitart, M. (2023). Vocational choice: A narrative identity approach conceived from cultural psychology. In Revista Colombiana de Psicología (Vol. 32, Issue 2, pp. 13–32). Universidad Nacional de Colombia. https://doi.org/10.15446/rcp.v32n2.96358

Burke, M. M., Rossetti, Z., Aleman‐Tovar, J., & Rios, K. (2021). Examining the Relation Between Empowerment and Civic Engagement Among Parents of Individuals With Intellectual and Developmental Disabilities. Journal of Applied Research in Intellectual Disabilities, 34(6), 1569–1581. https://doi.org/10.1111/jar.12901

Cavanagh, D. E., Caton, S., Rawles, J., Hatton, C., Hastings, R. P., Hastings, R., Hatton, C., Bradshaw, J., Caton, S., Cavanagh, D., Gillooly, A., Jahoda, A., Kelly, R., Maguire, R., Oloidi, E., Rawles, J., Taggart, L., & Todd, S. (2025). Living Through the COVID-19 Pandemic: The Experiences of People With Profound and Multiple Intellectual Disabilities Through a Family Carer Lens. Journal of Applied Research in Intellectual Disabilities, 38(4). https://doi.org/10.1111/jar.70088

Chen, X., Huang, Z., & Lin, W. (2022). The Effect of Emotion Regulation on Happiness and Resilience of University Students: The Chain Mediating Role of Learning Motivation and Target Positioning. Frontiers in Psychology, 13. https://doi.org/10.3389/fpsyg.2022.1029655

Coulman, E., Gore, N., Moody, G., Wright, M., Segrott, J., Gillespie, D., Petrou, S., Lugg‐Widger, F., Kim, S. W., Bradshaw, J., McNamara, R., Jahoda, A., Lindsay, G., Shurlock, J., Totsika, V., Stanford, C., Flynn, S., Carter, A., Barlow, C., & Hastings, R. P. (2022). Early Positive Approaches to Support for Families of Young Children With Intellectual Disability: The E-PAtS Feasibility RCT. Public Health Research, 10(2), 1–144. https://doi.org/10.3310/heyy3556

Feldman, M. A., & Aunos, M. (2020). Recent Trends and Future Directions in Research Regarding Parents with Intellectual and Developmental Disabilities. Current Developmental Disorders Reports, 7(3), 173–181. https://doi.org/10.1007/s40474-020-00204-y

Fong, C. Y., & Ali, M. M. (2023). Parental Stress in Caring for Children With Disability. International Journal of Academic Research in Business and Social Sciences, 13(5). https://doi.org/10.6007/ijarbss/v13-i5/16822

Hussain, T., Hussain, S., Hussain, S., Jabeen, N., & Nurunnabi, M. (2020). Measuring Mental Health of Caregivers of Special Children: A Case of Gilgit-Baltistan (GB), Pakistan. Sage Open, 10(2). https://doi.org/10.1177/2158244020919509

Jang, S. J., Han, J.-S., Bang, M. H., & Ahn, J. (2022). Effects of a Sociodrama-Based Communication Enhancement Program on Mothers of Children With Neurodevelopmental Disorders: A Pilot Study. Asian Nursing Research, 16(2), 114–123. https://doi.org/10.1016/j.anr.2022.03.005

Kausar, N., Bibi, B., & Raza, S. B. (2021). Moderating Role of Perceived Social Support in Perceived Stress and Quality of Life Among Parents of Children With Special Needs. Global Sociological Review, VI(I), 15–22. https://doi.org/10.31703/gsr.2021(vi-i).03

Kim, M. A., Yi, J., Jung, S. M., Hwang, S., & Sung, J. (2021). A Qualitative Study on Parents’ Concerns About Adult Children With Intellectual Disabilities Amid the COVID‐19 Pandemic in South Korea. Journal of Applied Research in Intellectual Disabilities, 34(4), 1145–1155. https://doi.org/10.1111/jar.12875

Laçin, E., & Doğan, B. G. (2024). Parenting Behaviors and Parental self-efficacy: A comparative study of parents of children with intellectual disabilities and typically developing children. Journal of Intellectual Disabilities, 28(4), 885–897. https://doi.org/10.1177/17446295231215414

Laçin, E., & LAÇİN, B. G. D. (2023). Parenting Behaviors and Parental Self-Efficacy: A Comparative Study of Parents of Children With Intellectual Disabilities and Typically Developing Children. Journal of Intellectual Disabilities, 28(4), 885–897. https://doi.org/10.1177/17446295231215414

Larsen, J. L., Hansson, H., Bisgaard, A., & Stahlhut, M. (2024). Psychological Aspects of Being a Parent of an Individual With Rett Syndrome: A Scoping Review. Journal of Applied Research in Intellectual Disabilities, 37(2). https://doi.org/10.1111/jar.13188

Levante, A., Martis, C., & Lecciso, F. (2025). The Quality of the Parent–Child Relationship in the Context of Autism: The Role of Parental Resolution of the Child’s Diagnosis, Parenting Stress, and Caregiving Burden. In European Journal of Investigation in Health, Psychology and Education (Vol. 15, Issue 7). https://doi.org/10.3390/ejihpe15070142

Michinobu, R., Yamamoto, M., Sakai, Y., Mikami, T., Igarashi, K., Iesato, K., Takebayashi, A., Hori, T., Tsutsumi, H., & Tsugawa, T. (2023). Parental Decision-Making in Cancer Therapy: A Long-Term Observational Study. Clinical Pediatrics, 62(9), 1059–1066. https://doi.org/10.1177/00099228221150606

More, R., & Tarleton, B. (2021). Experiencing Motherhood and Fatherhood With Learning Difficulties in Austria: The Need for Self‐determined Support. British Journal of Learning Disabilities, 50(4), 455–466. https://doi.org/10.1111/bld.12395

O’Neil, S. M., & Gopal, J. (2021). “Just smile and wave”: Workplace requirements and emotional labour of academic staff at a South African university. Journal of Psychology in Africa, 31(5), 470–480. https://doi.org/10.1080/14330237.2021.1978680

Poorhosseinzadeh, M., & Strachan, G. (2021). Straightjackets of Male Domination in Senior Positions: Revisiting Acker’s ‘Ideal Worker’ and the Construction of the ‘Ideal Executive.’ British Journal of Management, 32(4), 1421–1439. https://doi.org/https://doi.org/10.1111/1467-8551.12448

Raine, Kristen E, & Skinner, Ellen A. (2023). Dynamics of parenting and children’s coping: Bidirectional effects between parent motivational support and children’s academic coping during late childhood and early adolescence. International Journal of Behavioral Development, 47(5), 397–409. https://doi.org/10.1177/01650254231187905

Rhamadona, S., Sufa, S., Indrasari, M., Brumadyadisty, G., & Asnawi, A. (2024). Analyzing the Digital Entrepreneurship Academy of Ministry of Communication and Information Surabaya in Pamekasan. International Journal of Health, Economics, and Social Sciences (IJHESS), 6(1), 66–69. https://doi.org/10.56338/ijhess.v6i1.4491

Smythe, T., Zuurmond, M., Tann, C., Gladstone, M., & Kuper, H. (2020). Early Intervention for Children With Developmental Disabilities in Low and Middle-Income Countries – The Case for Action. International Health, 13(3), 222–231. https://doi.org/10.1093/inthealth/ihaa044

Spencer, M., Tarleton, B., Collings, S., McIntyre, G., & Turney, D. (2024). If We Know What Works, Why Aren’t We Doing It? The British Journal of Social Work, 54(6), 2808–2825. https://doi.org/10.1093/bjsw/bcae080

Staunton, E., Kehoe, C., & Sharkey, L. (2020). Families Under Pressure: Stress and Quality of Life in Parents of Children With an Intellectual Disability. Irish Journal of Psychological Medicine, 40(2), 192–199. https://doi.org/10.1017/ipm.2020.4

Widiarto, D. S., Sufa, S. A., & Riswari, C. R. A. (2018). Pengaruh Peran Komunikasi Orang Tua Terhadap Keputusan Mahasiswa Baru Dalam Memilih Program Studi Di Perguruan Tinggi (Studi Kasus: Universitas Dr. Soetomo). Vol 3 No 2 (2019): 6th Edition, 2(1), 53–64. https://doi.org/10.23960/metakom.v2i1.20

Yamaoka, Y., Hosozawa, M., Sampei, M., Sawada, N., Okubo, Y., Tanaka, K., Yamaguchi, A., Hangai, M., & Morisaki, N. (2021). Abusive and Positive Parenting Behavior in Japan During the COVID-19 Pandemic Under the State of Emergency. Child Abuse & Neglect, 120, 105212. https://doi.org/10.1016/j.chiabu.2021.105212

Zulkifli, A., Sidin, A. I., Nasrah, N., Rahmah, S., & Fitri, A. U. (2021). Strengthening Community-Based Surveillance Cadre Activeness Through Interpersonal Communication and Module Development in Barru District. Open Access Macedonian Journal of Medical Sciences, 9(E), 187–191. https://doi.org/10.3889/oamjms.2021.5762

Downloads

Published

2026-06-28